Join Groundbreaking Genetic Research That Could Change Lives
Let's Solve This Problem Together
One of the greatest challenges to researchers is access to large, high-quality, and diverse genomic datasets. Research labs traditionally spend years and significant resources recruiting participants for a single study, slowing the pace of discovery that could lead to life-changing treatments.
Sequencing.com is collaborating with the renowned Norris Lab at the Medical University of South Carolina to uncover the genetic landscape of hypermobile Ehlers-Danlos syndrome (hEDS) and dysautonomia.
The Norris Lab, based at the Medical University of South Carolina in Charleston, is a multidisciplinary research team focused on understanding and treating connective tissue and cardiovascular diseases, including Ehlers-Danlos syndrome (EDS). Led by Dr. Russell A. Norris, the lab integrates basic science, genetics, and clinical research to uncover the molecular mechanisms driving these conditions and translate discoveries into meaningful advances in diagnosis and patient care.
Sequencing.com is collaborating with the renowned Norris Lab at the Medical University of South Carolina to accelerate discoveries in hypermobile Ehlers-Danlos syndrome, Dysautonomia, and other complex conditions.
Sequencing.com does not sell user data and is not profiting from this study. Guided by our core principle of privacy forever, your data always remains yours. You control if and when you share your data.
I've Been Sequenced
You can opt in now to securely share your de-identified data with the Norris Lab for this research study.
Join the study by purchasing any of our comprehensive whole genome sequencing kits.
I Have Not Been Sequenced Yet
Join Groundbreaking Genetic Research That Could Change Lives
Sequencing.com is collaborating with the renowned Norris Lab at the Medical University of South Carolina to accelerate discoveries in hypermobile Ehlers-Danlos syndrome, Dysautonomia, and other complex conditions.
Sequencing.com does not sell user data and is not profiting from this study. Guided by our core principle of privacy forever, your data always remains yours. You control if and when you share your data.
Let's Solve This Problem Together
One of the greatest challenges to researchers is access to large, high-quality, and diverse genomic datasets. Research labs traditionally spend years and significant resources recruiting participants for a single study, slowing the pace of discovery that could lead to life-changing treatments.
Sequencing.com is collaborating with the renowned Norris Lab at the Medical University of South Carolina to uncover the genetic landscape of hypermobile Ehlers-Danlos syndrome (hEDS) and dysautonomia.
The Norris Lab, based at the Medical University of South Carolina in Charleston, is a multidisciplinary research team focused on understanding and treating connective tissue and cardiovascular diseases, including Ehlers-Danlos syndrome (EDS). Led by Dr. Russell A. Norris, the lab integrates basic science, genetics, and clinical research to uncover the molecular mechanisms driving these conditions and translate discoveries into meaningful advances in diagnosis and patient care.
World-Class Research Meets Your Data
Two Ways to Join This Important Research
I've Been Sequenced
You can opt in to securely share your de-identified data with the Norris Lab for this research study.
Sequencing.com's whole genome sequencing technology enables researchers to greatly accelerate genetic discoveries, helping people suffering from hypermobile EDS and dysautonomia benefit from research breakthroughs sooner.
FAQ
23andMe data?
How's my data used?
Participation? How and Steps
Which Seq Kit Do I Need To Participate?
Are you profiting off my data?
How long do I have to participate?
Can I order without participating?
Who can participate?
Who is Sequencing.com?
Who is The Norris Lab?
How is Sequencing.com and The Norris Lab working together?
FAQ Section
No. This research study requires whole genome sequencing data, which captures nearly all of your genetic information. Consumer ancestry tests like 23andMe and Ancestry analyze only a small fraction of the genome and do not provide the depth or resolution needed for this type of research. To participate, you must have Whole Genome Sequencing from Sequencing.com.
Your genomic data is securely de-identified and analyzed by researchers at the Norris Lab to identify genetic patterns associated with hypermobile Ehlers-Danlos syndrome and Dysautonomia. Your name and personal identifiers are never shared, and your data is used solely for approved research purposes.
Participation is simple and takes less than 10 minutes:
- Choose to opt in HERE and securely share your de-identified genomic data
- Review the research consent
- Complete a short online survey
That's it. No additional appointments or lab visits are required.
You need a Whole Genome Sequencing kit from Sequencing.com. If you do not already have one, you can purchase a whole genome sequencing kit here. If you already have Sequencing.com WGS results from any of our other bundles, you can opt in to participate at any time.
Anyone with Whole Genome Sequencing data from Sequencing.com is eligible to participate. You do not need to have Ehlers-Danlos syndrome or Dysautonomia to contribute. Data from individuals with and without these conditions is critical for meaningful research comparisons.
No. There is no deadline. You can join Sequencing.com's research initiatives at any time by completing the survey and opting in to participate.
Yes. You can order a Whole Genome Sequencing kit without participating in the research study. Participation is completely voluntary and optional.
No. Sequencing.com does not sell user data and is not profiting from this study. This is a purely scientific collaboration to advance genetic research.
Sequencing.com is a leading genomics company that provides comprehensive DNA testing and analysis services. We're committed to "Privacy Forever" and putting customers in control of their genetic data.
The Norris Lab is a research laboratory at the Medical University of South Carolina led by Dr. Russell Norris, PhD. The lab is internationally recognized for its work studying the genetic basis of complex conditions, including connective tissue disorders and autonomic dysfunction.
This initiative will analyze whole-genome sequencing data of individuals with Ehlers-Danlos syndrome (EDS) and Dysautonomia, as well as those without these conditions, with the goal of making it the largest genetic study of these conditions ever undertaken. The unprecedented scale of this collaboration has the potential to unlock new genetic discoveries, identify therapeutic targets, and provide the molecular insights that could advance the development of treatments for patients.
FAQ
No. This research study requires whole genome sequencing data, which captures nearly all of your genetic information. Consumer ancestry tests like 23andMe and Ancestry analyze only a small fraction of the genome and do not provide the depth or resolution needed for this type of research. To participate, you must have Whole Genome Sequencing from Sequencing.com.
Your genomic data is securely de-identified and analyzed by researchers at the Norris Lab to identify genetic patterns associated with hypermobile Ehlers-Danlos syndrome and Dysautonomia. Your name and personal identifiers are never shared, and your data is used solely for approved research purposes.
Participation is simple and takes less than 10 minutes:
- Choose to opt in HERE and securely share your de-identified genomic data
- Review the research consent
- Complete a short online survey
That's it. No additional appointments or lab visits are required.
You need a Whole Genome Sequencing kit from Sequencing.com. If you do not already have one, you can purchase a whole genome sequencing kit here. If you already have Sequencing.com WGS results from any of our other bundles, you can opt in to participate at any time.
Anyone with Whole Genome Sequencing data from Sequencing.com is eligible to participate. You do not need to have Ehlers-Danlos syndrome or Dysautonomia to contribute. Data from individuals with and without these conditions is critical for meaningful research comparisons.
No. There is no deadline. You can join Sequencing.com's research initiatives at any time by completing the survey and opting in to participate.
Yes. You can order a Whole Genome Sequencing kit without participating in the research study. Participation is completely voluntary and optional.
No. Sequencing.com does not sell user data and is not profiting from this study. This is a purely scientific collaboration to advance genetic research.
Sequencing.com is a leading genomics company that provides comprehensive DNA testing and analysis services. We're committed to "Privacy Forever" and putting customers in control of their genetic data.
The Norris Lab is a research laboratory at the Medical University of South Carolina led by Dr. Russell Norris, PhD. The lab is internationally recognized for its work studying the genetic basis of complex conditions, including connective tissue disorders and autonomic dysfunction.
This initiative will analyze whole-genome sequences of individuals with Ehlers-Danlos syndrome (EDS) and Dysautonomia, as well as those without these conditions, with the goal of making it the largest genetic study of these conditions ever undertaken. The unprecedented scale of this collaboration has the potential to unlock new genetic discoveries, identify therapeutic targets, and provide the molecular insights that could advance the development of treatments for patients.
Sequencing.com's whole genome sequencing technology enables researchers to greatly accelerate genetic discoveries, helping people suffering from hypermobile EDS and dysautonomia benefit from research breakthroughs sooner.
